Biden plan: How tax credits might be the solution for family caregivers

The Ohio District 5 Area Agency on Aging hires state-tested nursing assistants (STNA) to act as community care specialists and provide in-home care to seniors. This care provides respite for unpaid family caregivers and allows seniors to continue living independently in their homes. In 2023 alone, the program served 130 residents, providing 2,371 hours of in-home care.

Worker-owned home-care cooperatives are emerging as an alternative to the for-profit agencies that dominate America's direct-care sector. In these cooperatives, professional caregivers earn an average of $2 more per hour than the industry standard, share in business decision-making, and stay on the job at nearly double the rate of workers at traditional agencies. Patients also stay with co-op agencies twice as long, suggesting higher satisfaction and quality of care.

Helpster Charity operates a tech-enabled emergency financing model that connects families facing urgent medical bills with donors through a website and app. The nonprofit uses volunteers stationed at partner health facilities to identify patients who can’t afford critical care for conditions like malaria, sickle cell anemia, and kidney problems. The organization has helped provide treatment for over 2,000 families across Nigeria, Kenya and Bangladesh.

The Castle Center provides adults with dementia in need of assistance care during the day. Open five days a week, the center offers participants meals, medication monitoring, personal care assistance with the help of nurses and volunteers, socialization and activities like arts and crafts. The Center also offers time off for caregivers — like family members — who often care for people with dementia 24/7.

LGBTQ+ organizations in the South, like The Campaign for Southern Equality, are raising money to give to families seeking gender-affirming care services for transgender youth. The money is used to cover travel costs to states without care bans, as well as gender-affirming clothing and other supplies. So far, the group has distributed about 350 $500 grants. In addition to funding, the group also works to ensure families have accurate information about gender-affirming care bans in their state, as the legal landscape is confusing and constantly changing.

Trualta is an online resource that provides free training, tips and other resources for caregivers of loved ones with dementia. The platform is available in 32 states and has been used by more than 12,000 caregivers since it was rolled out in May 2022. Studies have found caregivers who use the app feel more confident in providing care and overall less burnt out.

Care Ring, in collaboration with other organizations like the University of North Carolina School of Nursing, launched The Bridge, a community-based healthcare initiative that aims to make preventive care easier to access. The Bridge features a mobile care unit that provides free health screenings, counseling support and connections to community resources. Since December 2022, The Bridge has provided care to more than 100 people, 39% of which didn’t have a regular doctor.

The Health and Social Development Foundation (HESED) aims to increase access to healthcare, specifically among pregnant women and children. HESED works to bring doctors closer to communities that struggle to get care and has also created designated spaces for important care that was previously inaccessible, like OBGYN checkups. Over the last three years, more than 400 people have received checkups from the center, regardless of their insurance status.

The Advanced Illness Care Program was founded within local Black churches and offers free, individualized support for people with advanced illnesses and their caregivers, helping them navigate various life and health issues and plan for end-of-life care. Since starting in 2015, the AICP has helped more than 1,600 patients, the majority of which are Black, and 55% of them have gone on to complete advance directives for end-of-life care.

Several groups in the Appalachian region are turning toward harm-reduction strategies to help those struggling with drug abuse. Research shows that those who participate in syringe exchange programs are five times more likely to enter treatment than those who didn’t participate. Groups like Holler Harm Reduction and Choice Health Network host scheduled drop-ins where they deliver supplies, provide naloxone training and education, and administer disease testing wound care to those in need.