‘House of Memories': Making Museums Dementia-Inclusive

The Village Landais is part of a movement to make memory-care units less like hospitals and more like small neighborhoods. The Village is currently home to 108 people and strives to provide those with alzheimers a place to live that still allows them to maintain a sense of autonomy and choice to help enrich their lives.

Virtual memory cafes for people with dementia are able to reach more people, avoid transportation and mobility barriers, and open new possibilities — like making new friends across the ocean. First pioneered in the Netherlands in the 1990s, memory cafes have spread around the world as a way for people experiencing memory loss and caregivers can find community and companionship.

The Partners in Caring Respite program pairs volunteers with people in the early stages of cognitive neurological disorders — like dementia — to offer care and companion programs, allowing them to build relationships and provide respite for family caregivers. Partners in Caring has expended to four counties across the state, serving over 400 families with its 70 on-call volunteers.

Dementia units and long-term care homes for the elderly are often desolate and lonely places, with harried workers attempting to meet the needs of their patients while also meeting government-set metrics of success. For families and individuals, it can be difficult to imagine a better way. However, a pilot program in Canada called the Butterfly room is showing that dedicated efforts to making long-term care homes a vibrant and loving place for someone's last days has positive impacts for everyone - and is worth a government investment do right across the country.

More than five million Americans have Alzheimer’s or similar illnesses, and that number is growing as the population ages - without any immediate prospect of a cure, advocacy groups have begun promoting ways to offer people with dementia a comfortable decline instead of imposing on them a medical model of care, which seeks to defer death through escalating interventions. An Arizona nursing home offers new ways to care for people with dementia.

The Musical Memories Cafe is a social gathering space for people with Alzheimer’s and dementia, as well as their caregivers. Participants gather to enjoy music, seek refuge outside of their homes and get access to peer support and health resources. There are more than 1,000 memory cafes operating around the world, both in-person and virtually.

Trualta is an online resource that provides free training, tips and other resources for caregivers of loved ones with dementia. The platform is available in 32 states and has been used by more than 12,000 caregivers since it was rolled out in May 2022. Studies have found caregivers who use the app feel more confident in providing care and overall less burnt out.

The Castle Center provides adults with dementia in need of assistance care during the day. Open five days a week, the center offers participants meals, medication monitoring, personal care assistance with the help of nurses and volunteers, socialization and activities like arts and crafts. The Center also offers time off for caregivers — like family members — who often care for people with dementia 24/7.

PACE — Program for All-Inclusive Care for the Elderly — provides free, necessary care to seniors, as well as resources like medicines and other accommodations. PACE also provides a health clinic, urgent care center, home services and offers respite to caregivers in need of a break. Nationwide, there are 273 PACE programs in 32 states. Michigan alone has seven, with two more to be added within the next year or so.

Caregivers who step up to the plate to care for friends or family members are often overworked and underpaid. To remedy this, several organizations and measures at both the local and national levels are emerging to provide support. For example, the RAISE Family Caregivers Act became law in 2018 and is designed to create a nationwide strategy on how government officials can better support caregivers. On a local level, nonprofits like Team Suzy provide financial support and resources to those suffering from dementia and Alzheimer’s who can’t afford necessary supplies.