Cheshire County has the highest rate of dementia in NH. Here's what locals are doing to help.

PACE — Program for All-Inclusive Care for the Elderly — provides free, necessary care to seniors, as well as resources like medicines and other accommodations. PACE also provides a health clinic, urgent care center, home services and offers respite to caregivers in need of a break. Nationwide, there are 273 PACE programs in 32 states. Michigan alone has seven, with two more to be added within the next year or so.

The Partners in Caring Respite program pairs volunteers with people in the early stages of cognitive neurological disorders — like dementia — to offer care and companion programs, allowing them to build relationships and provide respite for family caregivers. Partners in Caring has expended to four counties across the state, serving over 400 families with its 70 on-call volunteers.

The Ohio District 5 Area Agency on Aging hires state-tested nursing assistants (STNA) to act as community care specialists and provide in-home care to seniors. This care provides respite for unpaid family caregivers and allows seniors to continue living independently in their homes. In 2023 alone, the program served 130 residents, providing 2,371 hours of in-home care.

The James L. West Center for Dementia Care’s Senior Day Program offers engaging activities like dance, music therapy and cooking classes, and a sense of community for people with dementia, while giving family caregivers a break. The Center currently cares for about 13 people each day, though it has the capacity for up to 20 people and is slated to expand to help more people.

The Money Follows the Person is a federal program that increases access to Medicaid funds for home and community care services for people transitioning out of institutional care. The program has helped more than 101,000 people move out of long-term care facilities into community or home living. The program has also helped people save money by cutting taxpayers’ Medicaid and Medicare bills by about 23% for each person who was moved out of a nursing home or other institution. Based on the program’s success, the current administration is reviewing plans to extend or make Money Follows the

The Musical Memories Cafe is a social gathering space for people with Alzheimer’s and dementia, as well as their caregivers. Participants gather to enjoy music, seek refuge outside of their homes and get access to peer support and health resources. There are more than 1,000 memory cafes operating around the world, both in-person and virtually.

Program for All-Inclusive Care for the Elderly (PACE) provides care to elders including adult day care, home health care and supplies like bed rails, eyeglasses and access to medications, while simultaneously providing respite to family caregivers. Studies show PACE program participants have lower rates of hospital use and shorter lengths of stay compared to those participating in other programs or opting for general nursing home care. The PACE centers in Metro Detroit serve 1,600 adults across its seven centers. Statewide, there are 14 active PACE programs across 24 centers.

Caregivers who step up to the plate to care for friends or family members are often overworked and underpaid. To remedy this, several organizations and measures at both the local and national levels are emerging to provide support. For example, the RAISE Family Caregivers Act became law in 2018 and is designed to create a nationwide strategy on how government officials can better support caregivers. On a local level, nonprofits like Team Suzy provide financial support and resources to those suffering from dementia and Alzheimer’s who can’t afford necessary supplies.

The Veterans Health Administration's Caregiver Support Program offers resources to family caregivers looking after veterans, including a monthly stipend, medical services, counseling and mental health care, respite care and coverage for travel expenses. The Program launched in 2011 and by 2014 about 15,600 caregivers had been approved for support — greatly exceeding the Program’s original estimate of 4,000 people.

More than five million Americans have Alzheimer’s or similar illnesses, and that number is growing as the population ages - without any immediate prospect of a cure, advocacy groups have begun promoting ways to offer people with dementia a comfortable decline instead of imposing on them a medical model of care, which seeks to defer death through escalating interventions. An Arizona nursing home offers new ways to care for people with dementia.